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45th Annual SCDAI 8K Walk, Jog, or Bike-a-Thon Set for July 20 in Chicago

Mary Chapman BY MARY CHAPMAN IN NEWS. The Sickle Cell Disease Association of Illinois (SCDAI) announced plans to hold its 45th Annual 8K Walk/Jog/Bike-A-Thon on July 20, continuing the group’s longstanding efforts to raise funds and disease awareness. Rain or shine, the event will take place starting at 8 a.m. along the shores of...

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Early Treatment with Hydroxyurea Lessened SCD Severity Among Infants, Study Shows

BY PATRICIA INACIO, PHD IN NEWS. Treatment with hydroxyurea since early infancy, starting at the age of one, is effective and safe at preventing sickle cell disease (SCD) complications, a follow-up study has found. The study “Prospective longitudinal follow-up of children with sickle cell disease treated with hydroxyurea since infancy” was published in journal Pediatric Blood and...

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New Parents and a Newborn with Sickle Cell Disease: What Now?

By Dr. Kevin Williams, Chief Medical Officer for Rare Disease at Pfizer Published June 27, 2019 In this article, I’d like to introduce you to TaLana Hughes, a mother of three who is also the executive director of the Sickle Cell Disease Association of Illinois (SCDAI). TaLana has one child...

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Cognitive Function May Be Affected in Adults with Sickle Cell Disease, Study Suggests

MAY 14, 2019 BY PATRICIA INACIO, PHD IN NEWS. Adults with sickle cell disease score worse than their healthy, unaffected siblings on cognitive tests, despite treatment with hydroxyurea, a study reports. The study “Neurocognitive functioning in symptomatic adults with sickle cell disease: A description and comparison with unaffected siblings” was published in the...

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Cognitive Function May Be Affected in Adults with Sickle Cell Disease, Study Suggests

BY PATRICIA INACIO, PHD Adults with sickle cell disease score worse than their healthy, unaffected siblings on cognitive tests, despite treatment with hydroxyurea, a study reports. The study “Neurocognitive functioning in symptomatic adults with sickle cell disease: A description and comparison with unaffected siblings” was published in the journal Neuropsychological Rehabilitation.Children and adults with sickle cell...

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Anambra To Establish Sickle Cell Clinics

By Raymond Ozoji -May 6, 2019 AWKA – Following the passage of the bill for the control and eradication of sickle cell anaemia into law in Anambra State, the state government may in no distant time commence the establishment of sickle clinics in all the 21 local government areas as well as general...

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CIRM and NHLBI Collaborating to Fund Cell and Gene Therapies for Sickle Cell Disease

BY ANA PENA MAY 7, 2019 The California Institute for Regenerative Medicine (CIRM) and the National Heart, Lung and Blood Institute (NHLBI) have entered into a “landmark” collaboration to co-fund and help speed the development of cell and gene therapies to cure sickle cell disease (SCD), according to a press release. The agreement was created under the National Institutes...