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HOW TO COPE WITH NEGATIVE ENERGY AS A WARRIOR

People who are pessimistic always go about life reeking and dropping off negative energies anywhere they go to and with whoever they come in contact with. They always see the bad in every good and they always seek ways to put other people down. They stir up emotions and get...

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SHE BATTLES HIV AND SICKLE CELL

I grew up in a middle income family, we were not rich but we had a loving and providing mother. During my primary school education I faced a lot of stigma from fellow pupils. Most of them never wanted to share a bench with me because of my yellow eyes....

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IGE MOZ’ STORY WITH SCD

My name is Moses Ige aka Mo’Zealah. Based in Lagos- Nigeria. 29 years of age living with sickle cell, type SS warrior.  Both my parents were AS and they happened to give birth to me in a time when knowledge of sickle cell wasn’t pronounced. They were told I had...

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DACTYLITIS IN WARRRIORS

What is dactylitis? Dactylitis is a severe pain that affects the bones of the hands or feet and sometimes both. It is the first symptom, the first indicator of sickle cell disease, especially in babies. Dactylitis is caused by a blockage or restraint of blood circulation. What are the symptoms...

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RETINOPATHY; A SICKLE CELL COMPLICATION

In 1910, James Herrick first described sickle cell disease (SCD). SCD is a disorder that affects the molecule called haemoglobin found in red blood cells whose function is to deliver oxygen to the cells in the body. SCD is caused by a mutation of this haemoglobin molecules which forms polymers...

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My Bed Wetting (Enuresis) Experience

Hi Guys! Its been ages…… I am so sorry been busy with life generally and helping the sickle cell community thrive….. I am back for good. Enuresis is defined as urinating when you do not intend to go. Enuresis is often called bed-wetting when it occurs at night. Enuresis is...

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Nigerian-British Rugby Player Ade Adebisi Named ‘Ambassador’ for BioMedomics’ Diagnostic Tool

BY MARY CHAPMAN The former professional rugby player Ade Adebisi, a sickle cell disease patient and advocate, has been named brand ambassador for Sickle Scan, BioMedomics’ rapid disease diagnostic tool. Currently vice chairman and general manager of the Nigeria Rugby League Association, Adebisi will represent what’s touted as the world’s first rapid test to help diagnose both SCD...

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NIH and Gates Foundation Each Invests $100M to Boost Development of Affordable Gene Therapies for Sickle Cell Disease, HIV

BY PATRICIA INACIO, PHD IN NEWS. The National Institutes of Health (NIH) and the Bill & Melinda Gates Foundation will each invest $100 million over the next four years to speed the development of affordable gene therapies for sickle cell disease (SCD) and the human immunodeficiency virus (HIV) on a global scale. “This unprecedented collaboration focuses from the get-go on...

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MANAGING STRESS AND LIVING WITH SICKLE CELL DISORDER

If you have spent some time on earth, then most likely the word ‘stress’ is not a strange one as you either would have used it in a conversation or heard someone use it during a chitchat or you must have experienced it. Stress is one of the things that...

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How Diet Can Help Support Sickle Cell Patients: A Nutritionist’s View

BY ALANA KESSLER IN NEWS. Strong evidence points to some complications of sickle cell anemia (SCA) having as much to do with nutrition as they do with genes.  Characteristics and symptoms of the disease include poor growth, pain, infection, decreased muscle function, problems with cognition and coordination, low antioxidant status, and anemia. Hypermetabolism —...