The Life of a Sickle Cell Warrior.
By Julia Ernst, Ms Following the positive results of the HOPE Study at ASH Annual Meeting and Exposition, Global Blood Therapeutics announced it will submit a new drug application to the FDA for voxelotor through an accelerated approval pathway, according to a press release issued by the company. Voxelotor (GBT440,...
by Audrey Mukoro · Published December 18, 2018 · Last modified December 19, 2018
Here is one of or survivors who is going through SCD complications and needs URGENT assistance,here is his story in his own words. “Like I said earlier October 2014 was the genesis of my worst attack battling sickle cell which was avascular necrosis of the left hip.. It...
by Audrey Mukoro · Published December 16, 2018 · Last modified December 28, 2018
Dear Diary feels good to be here again. Audre Lorde “It is not our differences that divide us. It is our inability to recognize, accept, and celebrate those differences.” (from Left Jessica, Anita and Me) ….. that was how I left senior secondary school unsure of what my future had...
By Alice Melao Global Blood Therapeutics’ lead therapeutic candidate voxelotor can induce rapid, robust, and sustained improvements in the amount of hemoglobin in adolescents and adults with sickle cell disease (SCD), according to interim results from the first part of a Phase 3 trial. The latest results of GBT’s clinical...
Credited to: Moki Edwin Kindzeka GAROUA, CAMEROON — Africans who have the blood disorder sickle cell anemia met this week in the northern Cameroon town of Garoua to step up an awareness campaign. One hundred people with sickle cell from Cameroon and five other African countries sit and talk...
We recently visited a sickle cell club established by the government in Delta state. . . It’s sad that many sickle clubs, home and warriors lack routine drugs. . . A good percentage of warriors and sickle cell organisation or people with the heart for Warriors cannot afford these routine...
By TSB Community Newsdesk 10:00, 12 DEC 2018 For the past three years, there’s not been a week that 38-year-old Ajay Dattani has not been in hospital. The step-father of three boys has an acute case of Sickle Cell Disorder – an inherited condition affecting the blood and various organs...
By Aanu Adeoye, for CNN Updated 1419 GMT (2219 HKT) November 20, 2018 Popular Nigerian on-air personality Tosyn Buknor died on November 19, 2018. Lagos, Nigeria (CNN)Nigerians are paying tribute to popular radio presenter and entertainer Tosyn Bucknor, who has died aged 37. Bucknor died from complications due to sickle...
September was sickle cell awareness month celebrated all over the world by warriors and sickle cell NGOs, Audrey Sickle Cell Foundation is not left on this. Our core purpose of this foundation is to Advocate, create awareness, educate and support the less privilege warriors in our immediate community. Audrey Sickle...
BY ANA PENA Music Therapy Helps Relieve Pain in Adults with Sickle Cell Disease, Pilot Trial Suggests Music therapy can help ease pain in adults with sickle cell disease (SCD), a pilot study showed. A single session of music improvisation with a music therapist helped significantly diminish the intensity of...
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