The Life of a Sickle Cell Warrior.
This News was originally published by Sickle Cell Anemia News HOME » WHAT IS SICKLE CELL ANEMIA? Sickle cell anemia is an inherited disease that affects red blood cells with an abnormal version of hemoglobin, the protein that carries oxygen throughout the body. The altered hemoglobin is known as hemoglobin S, or sickle hemoglobin, because...
December 30, 2018 ADDED TO EMAIL ALERTS David A. Williams The Bill and Melinda Gates Foundation awarded a $1.5 million grant to Boston Children’s Hospital to research and develop gene therapy treatment for sickle cell disease. The research will be directed toward gene therapy methods that can be applied in...
by Audrey Mukoro · Published January 22, 2019 · Last modified January 24, 2019
By Shamaan Freeman-PowellBBC News 21 January 2019 Viewers and people with sickle cell disease have praised TV show Call The Midwife for its storyline portraying the condition. In Sunday’s episode, which is set in 1964, characters Dr Turner and Nurse Trixie Franklin discover that a mysterious disease affecting a young...
by Audrey Mukoro · Published January 17, 2019 · Last modified January 22, 2019
JANUARY 08, 2019 Jennifer Barrett, Associate EditorOfficials with the FDA have granted Breakthrough Therapy designation to Novartis’ crizanlizumab (SEG101) for the prevention of vaso-occlusive crises (VOCs) in patients of all genotypes with sickle cell disease (SCD), according to a press release. Patients with SCD face a high economic burden, with...
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by Audrey Mukoro · Published January 2, 2019 · Last modified January 4, 2019
Recently an advanced lady reached out to us to help her with her warrior daughter who is terribly sick and has been so for some time now.The woman told #ASCF that her daughter has been suffering from an infection for 3 years now and they have done all they could do but...
Without drawing the blood, this device can ascertain whether the patient is affected with the sickle cell disease or not, in just three minutes. By Author Yuvraj Akula With the photoplethysmography technique, the device tests the blood particles using the light rays which pass through a finger. It then figures...
The Omotoke Gambari Foundation recently reached out to 63 children living with sickle cell anemia with the aim of celebrating them despite their health challenges and indigent situation. Sunday Ehigiator writes The recent death of popular radio presenter, Tosyn Bucknor, from health complications relating to sickle cell anemia has again...
ON DECEMBER 22, 20182:23 AM By Sola Ogundipe TWENTY one year-old Afolayan Abayomi Azeez was born with Sickle Cell Disorder. The 400 level Chemistry undergraduate of the University of Lagos who hails from Abeokuta North Local Government of Ogun State is currently volunteers for Genotype Foundation. Left:Doris Gbemiloye, Founder/President Genotype...
Dec. 19, 2018 / 10:24 AM GMT / Updated Dec. 24, 2018 / 11:49 PM GMT By Chandelis R. Duster A bipartisan bill aimed at fighting sickle disease was signed into law by President Donald Trump on Tuesday night. The Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance,...
BY ALEJANDRA VIVIESCAS, PHD Bluebirdbio.com presented new positive results from the ongoing Phase 1/2 HGB-206 clinical trial evaluating the effectiveness and safety of investigational gene therapy LentiGlobin in patients with severe sickle cell anemia. The company had previously revealed findings from the trial at the end of last year...
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