Category: News

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ACCEL Program Launched to Improve Healthcare Access for Sickle Cell Patients

By CATRINA SILVA Global Blood Therapeutics (GBT) intends to improve access to high-quality healthcare for people with sickle cell disease (SCD) in the U.S. through the recently launched Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL). The company will donate up to $150,000 to speed the development of promising programs aimed...

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Spectra Optia Device Save Way to Treat Sickle Cell While Using Less Blood Cell Packs, Study Finds

BY CATARINA SILVA The blood-separation device Spectra Optia, which has the ability to remove abnormal red blood cells from sickle cell patients, can efficiently and safely replace these cells with healthy red blood cells from donors, a study reports. The therapeutic tool also uses less red blood cell units than regular transfusion techniques, i.e., without...

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Sickle-cell anaemia not a death sentence — Experts

 by Medinat Kanabe    February 23, 2019 There is a notion in Nigeria that anybody living with the sickle- cell anaemia, popularly referred to as SS, hardly lives beyond 40 years. As a matter of fact, when you come across anyone living with the condition, the next thing that comes to the mind...

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We had a chance to wipe out sickle cell. And, we didn’t.

By Jad Sleiman  Listen 12:01 Today, about 100,000 Americans live with sickle cell disease. But there was a moment in the early 1970s when it seemed it was going to be wiped out. The inherited blood disorder mostly affects people of African descent, as well as Mediterranean and South Indian peoples....

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NY Support Lags for Sickle-Cell Patients Facing Pain, Poor Treatment, Discrimination

Sickle cell disease is an inherited disorder that prevents red blood cells from carrying oxygen throughout the body properly, due to their crescent-like, sickle shape. By Bailey Hosfelt Chronic pain, health complications and frequent trips to the emergency room are everyday concerns for an estimated 10,000 New Yorkers living with sickle-cell...

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ATS Releases Guidelines for Home Oxygen Therapy in Children with Sickle Cell Disease

FEBRUARY 12, 2019 BY JOANA CARVALHO The American Thoracic Society (ATS) released a set of new guidelines for home oxygen therapy for children with chronic health conditions that cause a reduction in blood oxygen levels, such as sickle cell disease. Other conditions include cystic fibrosis, bronchopulmonary dysplasia, sleep disturbed breathing, pulmonary hypertension with and without congenital heart disease, and interstitial lung disease....

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Emmaus Unveils Co-payment Assistance Program for SCD Endari Patients

FEBRUARY 7, 2019 BY MARY CHAPMAN For eligible sickle cell disease (SCD) patients covered by commercial insurance, biopharmaceutical company Emmaus Life Sciences will offer financial assistance to those who need help covering their monthly Endari co-payments. Emmaus is the developer of Endari (L-glutamine oral powder, and called Xyndari in Europe). In the United States, Endari was approved in 2017 as a...

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Kids with Sickle Cell Anemia are More Sedentary than Healthy Peers, Study Suggests

BY ALEJANDRA VIVIESCAS, PHD Children and adolescents with sickle cell anemia do less physical activity and have a more sedentary lifestyle than healthy controls, according to a study. The study, “Objectively measured physical activity levels and sedentary time in children and adolescents with sickle cell anemia,” was published in PLOS ONE. The red blood...

Government Of Ghana Partners Novartis To Improve Diagnosis, Treatment Of Sickle Cell Disease 1

Government Of Ghana Partners Novartis To Improve Diagnosis, Treatment Of Sickle Cell Disease

Content provided by APO Group on behalf of The Presidency, Republic of Ghana. Originally from African News The Government of Ghana, through the Ministry of Health, Ghana Health Service and other allied agencies, has signed a Memorandum of Understanding with global medicines company Novartis to create a new public-private partnership...

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Vaso-Occlusive Pain Linked to Menstruation in Some Patients, Study Finds

JANUARY 24, 2019 BY ALICE MELÃO IN NEWS. Acute vaso-occlusive pain is associated with the onset of menstruation, and about 25% of the women with sickle cell disease can differentiate these episodes from menstrual-cramp pain, a study found. Findings in the study, “Acute Vaso-Occlusive Pain is Temporally Associated with the Onset of Menstruation in Women with...