The Life of a Sickle Cell Warrior.
by Audrey Mukoro · Published January 22, 2019 · Last modified January 24, 2019
By Shamaan Freeman-PowellBBC News 21 January 2019 Viewers and people with sickle cell disease have praised TV show Call The Midwife for its storyline portraying the condition. In Sunday’s episode, which is set in 1964, characters Dr Turner and Nurse Trixie Franklin discover that a mysterious disease affecting a young...
by Audrey Mukoro · Published January 17, 2019 · Last modified January 22, 2019
JANUARY 08, 2019 Jennifer Barrett, Associate EditorOfficials with the FDA have granted Breakthrough Therapy designation to Novartis’ crizanlizumab (SEG101) for the prevention of vaso-occlusive crises (VOCs) in patients of all genotypes with sickle cell disease (SCD), according to a press release. Patients with SCD face a high economic burden, with...
General / Home / Projects / Warriors
by Audrey Mukoro · Published January 2, 2019 · Last modified January 4, 2019
Recently an advanced lady reached out to us to help her with her warrior daughter who is terribly sick and has been so for some time now.The woman told #ASCF that her daughter has been suffering from an infection for 3 years now and they have done all they could do but...
by Audrey Mukoro · Published December 16, 2018 · Last modified December 28, 2018
Dear Diary feels good to be here again. Audre Lorde “It is not our differences that divide us. It is our inability to recognize, accept, and celebrate those differences.” (from Left Jessica, Anita and Me) ….. that was how I left senior secondary school unsure of what my future had...
September was sickle cell awareness month celebrated all over the world by warriors and sickle cell NGOs, Audrey Sickle Cell Foundation is not left on this. Our core purpose of this foundation is to Advocate, create awareness, educate and support the less privilege warriors in our immediate community. Audrey Sickle...
BY ANA PENA Music Therapy Helps Relieve Pain in Adults with Sickle Cell Disease, Pilot Trial Suggests Music therapy can help ease pain in adults with sickle cell disease (SCD), a pilot study showed. A single session of music improvisation with a music therapist helped significantly diminish the intensity of...
September is sickle cell awareness month and is celebrated all over the world by warriors and sickle cell NGOs all over, Audrey Sickle Cell Foundation is not left on this. Our core purpose of this foundation is to Advocate, create awareness, educate and support the less privilege warriors in our...
Growth, development and nutrition As with any long-term illness, a child with SCD may grow more slowly than usual, or be undernourished if the illness affects their appetite. Your child’s growth, development and nutrition should be checked regularly, and nutritional supplements may be given if needed. Some children with SCD...
General / Home / Projects / Warriors
by Audrey Mukoro · Published August 20, 2018 · Last modified August 23, 2018
On the 8th of July, 2018, we published a post, titled Project Lucky, It was a solicitation for support for a Warrior named Lucky. We have made progress with Luck and we want to do more. Here’s an update on Project Lucky. As earlier said, Lucky is a warrior living...
Sickle Cell Treatments Can Destroy Germ Cells in Boys, Affecting Fertility in Adulthood, Study Suggests BY KARA ELAM Sickle Cell Treatments Can Destroy Germ Cells in Boys, Affecting Fertility in Adulthood, Study Suggests Some treatments for sickle cell disease or cancer can destroy germ cells that later develop into...
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