The Life of a Sickle Cell Warrior.
By Sickle Cell Warrior – That’s a great question. I don’t think that you can really get rid of the fear until you have had successful sessions in the boudoir without a crises. It does take a while to find the best routine and regimen that works for you, and...
by Medinat Kanabe February 23, 2019 There is a notion in Nigeria that anybody living with the sickle- cell anaemia, popularly referred to as SS, hardly lives beyond 40 years. As a matter of fact, when you come across anyone living with the condition, the next thing that comes to the mind...
By Jad Sleiman Listen 12:01 Today, about 100,000 Americans live with sickle cell disease. But there was a moment in the early 1970s when it seemed it was going to be wiped out. The inherited blood disorder mostly affects people of African descent, as well as Mediterranean and South Indian peoples....
Sickle cell disease is an inherited disorder that prevents red blood cells from carrying oxygen throughout the body properly, due to their crescent-like, sickle shape. By Bailey Hosfelt Chronic pain, health complications and frequent trips to the emergency room are everyday concerns for an estimated 10,000 New Yorkers living with sickle-cell...
FEBRUARY 12, 2019 BY JOANA CARVALHO The American Thoracic Society (ATS) released a set of new guidelines for home oxygen therapy for children with chronic health conditions that cause a reduction in blood oxygen levels, such as sickle cell disease. Other conditions include cystic fibrosis, bronchopulmonary dysplasia, sleep disturbed breathing, pulmonary hypertension with and without congenital heart disease, and interstitial lung disease....
FEBRUARY 7, 2019 BY MARY CHAPMAN For eligible sickle cell disease (SCD) patients covered by commercial insurance, biopharmaceutical company Emmaus Life Sciences will offer financial assistance to those who need help covering their monthly Endari co-payments. Emmaus is the developer of Endari (L-glutamine oral powder, and called Xyndari in Europe). In the United States, Endari was approved in 2017 as a...
BY ALEJANDRA VIVIESCAS, PHD Children and adolescents with sickle cell anemia do less physical activity and have a more sedentary lifestyle than healthy controls, according to a study. The study, “Objectively measured physical activity levels and sedentary time in children and adolescents with sickle cell anemia,” was published in PLOS ONE. The red blood...
Content provided by APO Group on behalf of The Presidency, Republic of Ghana. Originally from African News The Government of Ghana, through the Ministry of Health, Ghana Health Service and other allied agencies, has signed a Memorandum of Understanding with global medicines company Novartis to create a new public-private partnership...
JANUARY 24, 2019 BY ALICE MELÃO IN NEWS. Acute vaso-occlusive pain is associated with the onset of menstruation, and about 25% of the women with sickle cell disease can differentiate these episodes from menstrual-cramp pain, a study found. Findings in the study, “Acute Vaso-Occlusive Pain is Temporally Associated with the Onset of Menstruation in Women with...
December 30, 2018 ADDED TO EMAIL ALERTS David A. Williams The Bill and Melinda Gates Foundation awarded a $1.5 million grant to Boston Children’s Hospital to research and develop gene therapy treatment for sickle cell disease. The research will be directed toward gene therapy methods that can be applied in...
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