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How Diet Can Help Support Sickle Cell Patients: A Nutritionist’s View

BY ALANA KESSLER IN NEWS. Strong evidence points to some complications of sickle cell anemia (SCA) having as much to do with nutrition as they do with genes.  Characteristics and symptoms of the disease include poor growth, pain, infection, decreased muscle function, problems with cognition and coordination, low antioxidant status, and anemia. Hypermetabolism —...

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Caraphenol A May Facilitate Faster, More Effective Gene Therapies for Sickle Cell Anemia, Study Says

BY PATRICIA INACIO, PHD IN NEWS. Caraphenol A — a small molecule closely related to a natural compound called resveratrol, which is produced by red grapes — increased the efficacy of hematopoietic stem cell-based gene therapy, a new study shows. The molecule holds potential to shorten the time and cost of using these...

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Tips for Traveling by Airplane with Sickle Cell

OCTOBER 23, 2019 BY TITO OYE IN COLUMNS, HER SICKLED JOURNEY – A COLUMN BY TITO OYE. In my previous column, I shared my suggestions on the preparations you should consider before taking a trip with sickle cell. The environment inside an airplane is not ideal for our bodies. On a flight, we are subjected...

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Voxelotor May Reduce Severity and Number of Leg Ulcers, Trial Analysis Suggests

BY MARISA WEXLER, MS IN NEWS. Voxelotor can reduce the severity of existing leg ulcers and the incidence of new ones in people with sickle cell disease (SCD), new clinical trial results suggest. The findings detailed by the treatment’s developer, Global Blood Therapeutics (GBT), are being presented at the 13th Annual Academy for Sickle Cell and Thalassemia Conference,...

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KYGC AT EGBOKODO/UBEJI

In carrying out research on the knowledge of sickle cell disorder and genotype importance; about 70 percent knew nothing about the sickle cell disorder and the few that knew about it referred to it as ‘Abiku’, they also did not see the need to know their genotype while in Egbokodo...

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ADVOCACY; WARRIORS ARE HUMANS TOO.

Few weeks back, an information got to us about the young man, we have been taking care of for some time now, that he was beaten by a man in his 40s for no just cause. On getting the sour news we had to go to the community to make...

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EFFURUN MARKET AWARENESS 2019

Effurun market awareness program was a success, thanks to ASCF crew,we did it and had fun educating people on ‘genotype ignorance’. During the exercise we had different people show interest * * We encountered a set of young men say in their mid to late 30s who argued blindly that...

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FEBRUARY LOVE A SICKLE 2019

Happy international day of happiness…So our February project love a sickle cell warrior was a success, as items donated for the project were in turn given to less privilege warriors at Otu Jeremi and neighbouring villages. * * The smiles and excitement having a group of warriors like them speak...