The Life of a Sickle Cell Warrior.
Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...
Sickle Cell Retinopathy It is the most important eye complication in sickle cell disease (SCD). It’s important to talk about it because it can lead to partial or complete loss of vision Mind you, there are other eye disease that can affect someone living with SCD that are not directly...
I am Odetayo Peter, a 28 year old sickle cell warrior, a graduate of Mechanical Engineering. I went to a military primary and secondary school, I didn’t grow up knowing I was a warrior though my mum and sister were warriors, I grew up thinking I was AS and everyone...
TOPIC: PICA IN SCD WARRIORS GUEST SPEAKER: DR UGONNA AJOKU on ASCF WhatsApp group on 15 April 2020. Hello Everyone. I’m sorry I had to reschedule because I was caught up in something but happy to be here and to meet you fine people. So our topic today is PICA...
BY PATRICIA INACIO, PHD Global Blood Therapeutics (GBT) is giving $250,000 to support the U.S. sickle cell disease (SCD) community during the COVID-19 pandemic. Its newly created GBT Community Fund will award a total of $150,000 in grants to non-profit organizations supporting the needs of SCD patients and their families during the pandemic. Applications are being accepted...
BY MARISA WEXLER, MS Children and adolescents with sickle cell disease (SCD) who lack vitamin D are hospitalized more often due to pain crises, have longer hospital stays, and make more frequent visits to the emergency room, a new study has found. The study, “The association between vitamin D deficiency and hospitalization outcomes in pediatric...
BY IQRA MUMAL, MSC IN NEWS. Acute chest syndrome, a serious complication of sickle cell disease that can accompany a vaso-occlusive crisis, is more likely in SCD patients who run high fevers, and have low blood oxygen levels and poor spleen function during such crises, a study of hospital records suggests. Other possible predictors of...
Source: NPR India Hardy has lived with pain since she was a toddler — from dull persistent aches to acute flare-ups that interrupt the flow of her normal life. The pain is from sickle cell disease, a group of genetic conditions that affect about 100,000 people in the U.S., many of them of...
Sickle cell disease is an inherited blood disorder. It is marked by flawed hemoglobin. That’s the protein in red blood cells that carries oxygen to the tissues of the body. So, sickle cell disease interferes with the delivery of oxygen to the tissues. Red blood cells with normal hemoglobin are...
AJIRIOGHENE OROMENA OGBOI (NEE UZIEWE) is a 35-year-old sickle cell patient and suffers from necrosis in her hips, leaving her bedridden and necessitating URGENT hip replacement surgery. She needs N3.8 million for the surgery. Since May 2019 when the condition developed, this mother of an eight-year-old boy has been in...
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