The Life of a Sickle Cell Warrior.
BY JOANA CARVALHO Brain oxygen supply is different in different regions of the brain of sickle cell disease (SCD) patients who are affected by anemia, which may explain the incidence of silent strokes, a recent study says. The findings of the study, “White matter has impaired resting oxygen delivery in sickle cell patients,” were published...
By Sickle Cell Warrior – That’s a great question. I don’t think that you can really get rid of the fear until you have had successful sessions in the boudoir without a crises. It does take a while to find the best routine and regimen that works for you, and...
by Medinat Kanabe February 23, 2019 There is a notion in Nigeria that anybody living with the sickle- cell anaemia, popularly referred to as SS, hardly lives beyond 40 years. As a matter of fact, when you come across anyone living with the condition, the next thing that comes to the mind...
Project love a sickle cell warrior:It is the month of Love, let’s show love to the less privilege warriors by donating any of the items we can afford be it small or big it will put a smile on the face of warriors. No item is too small. How: by...
HOME » PAIN MANAGEMENT GUIDELINES FOR SICKLE CELL ANEMIA Sickle cell anemia is an inherited disease that is caused by an abnormal version of hemoglobin, known as hemoglobin S or sickle hemoglobin. Patients with the disease often experience acute or chronic pain. Opioids sometimes may be used to manage this pain. However, some clinicians have biases against...
By Jad Sleiman Listen 12:01 Today, about 100,000 Americans live with sickle cell disease. But there was a moment in the early 1970s when it seemed it was going to be wiped out. The inherited blood disorder mostly affects people of African descent, as well as Mediterranean and South Indian peoples....
Sickle cell disease is an inherited disorder that prevents red blood cells from carrying oxygen throughout the body properly, due to their crescent-like, sickle shape. By Bailey Hosfelt Chronic pain, health complications and frequent trips to the emergency room are everyday concerns for an estimated 10,000 New Yorkers living with sickle-cell...
FEBRUARY 12, 2019 BY JOANA CARVALHO The American Thoracic Society (ATS) released a set of new guidelines for home oxygen therapy for children with chronic health conditions that cause a reduction in blood oxygen levels, such as sickle cell disease. Other conditions include cystic fibrosis, bronchopulmonary dysplasia, sleep disturbed breathing, pulmonary hypertension with and without congenital heart disease, and interstitial lung disease....
FEBRUARY 7, 2019 BY MARY CHAPMAN For eligible sickle cell disease (SCD) patients covered by commercial insurance, biopharmaceutical company Emmaus Life Sciences will offer financial assistance to those who need help covering their monthly Endari co-payments. Emmaus is the developer of Endari (L-glutamine oral powder, and called Xyndari in Europe). In the United States, Endari was approved in 2017 as a...
BY ALEJANDRA VIVIESCAS, PHD Children and adolescents with sickle cell anemia do less physical activity and have a more sedentary lifestyle than healthy controls, according to a study. The study, “Objectively measured physical activity levels and sedentary time in children and adolescents with sickle cell anemia,” was published in PLOS ONE. The red blood...
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