The Life of a Sickle Cell Warrior.
Hi Guys! Its been ages…… I am so sorry been busy with life generally and helping the sickle cell community thrive….. I am back for good. Enuresis is defined as urinating when you do not intend to go. Enuresis is often called bed-wetting when it occurs at night. Enuresis is...
BY MARY CHAPMAN The former professional rugby player Ade Adebisi, a sickle cell disease patient and advocate, has been named brand ambassador for Sickle Scan, BioMedomics’ rapid disease diagnostic tool. Currently vice chairman and general manager of the Nigeria Rugby League Association, Adebisi will represent what’s touted as the world’s first rapid test to help diagnose both SCD...
BY PATRICIA INACIO, PHD IN NEWS. The National Institutes of Health (NIH) and the Bill & Melinda Gates Foundation will each invest $100 million over the next four years to speed the development of affordable gene therapies for sickle cell disease (SCD) and the human immunodeficiency virus (HIV) on a global scale. “This unprecedented collaboration focuses from the get-go on...
If you have spent some time on earth, then most likely the word ‘stress’ is not a strange one as you either would have used it in a conversation or heard someone use it during a chitchat or you must have experienced it. Stress is one of the things that...
BY ALANA KESSLER IN NEWS. Strong evidence points to some complications of sickle cell anemia (SCA) having as much to do with nutrition as they do with genes. Characteristics and symptoms of the disease include poor growth, pain, infection, decreased muscle function, problems with cognition and coordination, low antioxidant status, and anemia. Hypermetabolism —...
BY PATRICIA INACIO, PHD IN NEWS. Caraphenol A — a small molecule closely related to a natural compound called resveratrol, which is produced by red grapes — increased the efficacy of hematopoietic stem cell-based gene therapy, a new study shows. The molecule holds potential to shorten the time and cost of using these...
OCTOBER 23, 2019 BY TITO OYE IN COLUMNS, HER SICKLED JOURNEY – A COLUMN BY TITO OYE. In my previous column, I shared my suggestions on the preparations you should consider before taking a trip with sickle cell. The environment inside an airplane is not ideal for our bodies. On a flight, we are subjected...
BY TITO OYE IN COLUMNS, HER SICKLED JOURNEY – A COLUMN BY TITO OYE. Ed. note: Welcome to the new column, “Her Sickled Journey,” by Tito Oye. Living with sickle cell anemia means that you have unknowingly agreed to a lifelong role of teaching. Many others are unaware of the challenges faced by those with...
BY MARISA WEXLER, MS IN NEWS. Voxelotor can reduce the severity of existing leg ulcers and the incidence of new ones in people with sickle cell disease (SCD), new clinical trial results suggest. The findings detailed by the treatment’s developer, Global Blood Therapeutics (GBT), are being presented at the 13th Annual Academy for Sickle Cell and Thalassemia Conference,...
Sickle cell anemia is a heritable disease caused by a mutation in the gene that provides instructions for the production of hemoglobin, the protein in red blood cells that carries oxygen. This mutation causes the red blood cells to become deformed and adopt an inflexible “sickle” shape that has difficulty traveling through small...
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