Category: General

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High Fever and Poor Blood Oxygen Levels Linked to Acute Chest Syndrome in SCD, Study Says

BY IQRA MUMAL, MSC IN NEWS. Acute chest syndrome, a serious complication of sickle cell disease that can accompany a vaso-occlusive crisis, is more likely in SCD patients who run high fevers, and have low blood oxygen levels and poor spleen function during such crises, a study of hospital records suggests. Other possible predictors of...

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BREAKING: World’s Oldest Person Living With Sickle Cell Disorder, Asiata Onikoyi-Laguda, Dies At 94

Credited to The Elites + Details of Her Last Moments Alhaja Ashata Onikoyi- Laguda, the world’s oldest person living with sickle cell, is dead. She passed yesterday, Saturday, in Lagos in her sleep. She was aged 94.  A source from the Onikoyi royal family confirmed the death of the legendary...

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SICKLE CELL DISORDER

Sickle cell disease is an inherited blood disorder. It is marked by flawed hemoglobin. That’s the protein in red blood cells that carries oxygen to the tissues of the body. So, sickle cell disease interferes with the delivery of oxygen to the tissues. Red blood cells with normal hemoglobin are...

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Oral Arginine therapy appears safe, effective for sickle cell disease pain management

ORLANDO — Oral supplementation with arginine resulted in faster resolution of pain associated with vaso-occlusive episodes among younger patients with sickle cell disease, according to the results of a randomized phase 2 trial presented at ASH Annual Meeting and Exposition. The study also showed that patients who had previous arginine...

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California Earmarks $15M for Expanding Care of Adult SCD Patients

By Mary Chapman California’s legislature has committed $15 million toward sweeping enhancement of adult sickle cell disease (SCD) care in a state with historically underserved patients. The initiative is intended to improve care largely through creation of a statewide network of regional adult SCD clinics modeled after the newly opened clinic at the Martin...

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KOGI’S FIRST DAUGHTER WHO IS A SICKLE CELL WARRIOR

Meet the 24 year old sickle cell warrior as she shares her beautiful story. The world don’t get to talk about sickle cell but they do in the case of cancer,HIV and the likes but I have lived with this disease for 24 years. I’ve been stigmatized, discriminated ,I have...

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AN INTERVIEW WITH SHARON BROWNE-PETER, A SICKLE CELL DIVA

Let’s start with a brief introduction. Tell us about you? Sharon: My name is Sharon Browne-Peter. I’m 23 with a bachelor’s degree in Real Estate and Urban Planning. In addition to this, I’ve spent the last 2 years working as a certified digital marketing professional. This year I actually founded my...