The Life of a Sickle Cell Warrior.
BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it appropriate to discuss...
Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...
BY MARY CHAPMAN While it will be entirely virtual this year, the 7th Annual Walk With the Stars & Move-A-Thon is taking place July 11 to raise awareness and money to fight sickle cell disease (SCD). Presented by the Sickle Cell Disease Association of America (SCDAA), the signature 5K national event is aimed at finding better treatments and a cure...
Sickle Cell Retinopathy It is the most important eye complication in sickle cell disease (SCD). It’s important to talk about it because it can lead to partial or complete loss of vision Mind you, there are other eye disease that can affect someone living with SCD that are not directly...
I am Odetayo Peter, a 28 year old sickle cell warrior, a graduate of Mechanical Engineering. I went to a military primary and secondary school, I didn’t grow up knowing I was a warrior though my mum and sister were warriors, I grew up thinking I was AS and everyone...
TOPIC: PICA IN SCD WARRIORS GUEST SPEAKER: DR UGONNA AJOKU on ASCF WhatsApp group on 15 April 2020. Hello Everyone. I’m sorry I had to reschedule because I was caught up in something but happy to be here and to meet you fine people. So our topic today is PICA...
BY MARY SHANIQUA I was hospitalized on March 3 with a sickle cell crisis and discharged 12 days later. I then spent a week recovering at home. Under normal circumstances, I would have returned to “ordinary life” on March 23. But during that period, ordinary life changed significantly due to the COVID-19 outbreak. In my...
BY PATRICIA INACIO, PHD Global Blood Therapeutics (GBT) is giving $250,000 to support the U.S. sickle cell disease (SCD) community during the COVID-19 pandemic. Its newly created GBT Community Fund will award a total of $150,000 in grants to non-profit organizations supporting the needs of SCD patients and their families during the pandemic. Applications are being accepted...
by Hawken Mill For most of his 39 years, Charles Hough lived with extreme pain caused by sickle cell disease, which dramatically reduced blood flow throughout his body. But thanks to the gene therapy he received in 2017, Hough is now symptom-free. “I feel like I have a new chance...
BY MARISA WEXLER, MS Children and adolescents with sickle cell disease (SCD) who lack vitamin D are hospitalized more often due to pain crises, have longer hospital stays, and make more frequent visits to the emergency room, a new study has found. The study, “The association between vitamin D deficiency and hospitalization outcomes in pediatric...
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